There is a lot of controversy over the proper treatment of Lyme with mainstream medical believing it can be treated by the CDC standards which are basically the guidelines set up by the Infectious Disease Society of America, and the other side (which is simply a different group of MDs) who believe the treatment guidelines put out by the IDSA are flawed. It is very likely that your Lyme disease could be causing your pain again. Any suggestions? I have had a history of CNS Lyme Disease treated fairly successfully, and flares are restricted to my knees. I need to work, but working as a medical assistant has been difficult due to pain and restricted movement of my right arm. Now I have to repeat the MRI in another 6 mos. The bone scan showed the area to be 'hot'. I have a strong constitution but am coming to end of my wit. The pain and muscle spasm is been horrific and I vomit with it. I also have a bone cyst in the posterior humerus that has grown from 1.0 cm to 1.5 cm in less that one year with an area of inflammation around it.
The surgeon at that time told my PCP to watch that I didn't develop a lymphosarcoma. 25 years ago I had a lymphofibroma removed from tis same level (exterior) that was growing. This hemangioma has grown from something minute to this in 8 years. After experiencing horrific pain for two years in my right arm and muscle loss in both, I have now been told that the probable source of the pain is coming from a 1.5 cm hemangioma at C5.
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